Hello, hello! How’s everyone doing this lovely Wednesday? Nothing new here. Official status of basically everything in my life: still waiting. If you’re just tuning in to the Wheelchair Saga, you can find parts 1, 2, 3, 4, 5, 6, and 7 at their respective links. This is going to be short.
Randy came out three weeks ago as of Tuesday around 3pm. The incorrect button was supposed to be shipped priority the day after he came out. It was shipped last week. I have had to be short in my emails to get updates. Yesterday, I asked for updates. The response was swift. Universal Med Supply has received the button and the new mounting hardware for the thigh pads, but there’s still no word on the thigh pads themselves. Mohamed called the wheelchair company and is waiting for them to get back to him about what’s going on with the pads. So, yeah. Still waiting.
Hello, hello! How’s everyone doing this lovely Wednesday? I don’t really have anything to ramble about, so I guess I’m just going to give you a few random life updates. None of these are worth an entire post by themselves. Mashing them together seems good enough. In no particular order, this is my life right now…
1. Wheelchair: still waiting for the correct parts to come in.
2. Medicaid: still waiting for them to finish reviewing my stuff and making sure I’m still poor. I do have screenshots of everything telling me that I’ve done my part and they’ll be in touch if they need anything else. I also recorded a phone call saying the same thing. Just in case they try to say otherwise.
3. Writing: I’ve written at least a little on my unnamed cozy mystery with ghosts every day in August. I’ve written 6480 words as of the 10th. I’ll try to write 100 or so tonight (Tuesday the 11th) and 1,000 on Wednesday. It’s going well so far.
4. Reading: I’m ahead on that.
5. Slushing: I’m behind on that. Mostly because I’m prioritizing writing. But I’m still doing it. I just feel bad that I’m not doing more.
6. Applying to vote by mail: my voter registration card had the wrong VUID. I’m just lucky I caught it now instead of when it’s time to vote. Dad’s was also wrong. If I were a conspiracy theorist, I might believe that the administration or someone connected to them is trying to fuck shit up by hacking voter systems and either randomly sending out wrong info to a random number of people in general OR they’re doing it to people who tend to vote Democrat even though we aren’t registered as Democrats. But there’s no proof of any of that and I’m not a conspiracy nut, so it was probably just a random malfunction that hit Dad and I because we’re at the same address. I don’t know. Check your voter registration card against county and Secretary of State records. Especially in Texas and definitely if you’re in Dallas county.
Howdy, howdy! How’s everyone doing this lovely first Wednesday of August? I’m grumpy and annoyed and haven’t been sleeping well at all. I called Medicaid yesterday and wasted an hour and a half of my life. Like 70 minutes of that was spent on hold. First girl was sweet but useless (they always are because I think their entire job is to transfer people to where they might need to go). She transferred me to the special escalation unit where they can answer basic questions or forward you to higher ups. I just wanted to know if my renewal was actually received. Second girl (less cheerful but also sweet) confirmed that it has been received and is actually under review. They have until November 12 to make their decision. But I really just wanted a recording saying it was received in case they try to screw me around like last year. Anyway, I’m mostly grumpy and annoyed about the wheelchair, so let’s update the Wheelchair Saga! Parts 1, 2, 3, 4, 5, and 6 can be found at their respective links. I’ll try to be quick because (believe it or not) this is not the last installment.
A little over a week ago, a guy named Randy brought my new wheelchair out and proceeded to start setting it up for me. Yay? Not really. There were things that were wrong. First off, I can’t reach the buttons on the joystick box, so I have to order special programmable buttons just to turn my chair on and off or control the speed profiles and seating. I currently have huge buttons that I have always hated aesthetically speaking. When I found a smaller two-in-one version, I was super happy. They cost Dad $525 out of pocket, which is fucking ridiculous. But for some reason, they sent a set that only had one wire. You have to plug the buttons in to make them work. In two different ports. Otherwise, only one button works. I checked. I told Mohamed I wanted the button that had two wires, so not my fault. I don’t know if it was ordered wrong or if Sunrise (Quickie maker) sent the wrong one. Either way, Randy told Mohamed and a Quickie tech what we needed and it was supposed to be shipped the next day priority after Mohamed signed paperwork. A week ago.
Another thing wrong was that I ordered thigh support pads. I got tiny ass knee support pads. I don’t know if any of you have seen my thigh fat, but it will destroy those tiny circles the first pothole we hit that jostles me into them. They could’ve sent either of the thigh pads and it would’ve been fine. Why knee pads? Who screwed up? Probably Universal, but I can’t be positive, so all I can do is grit my teeth and wait for it to be fixed.
The only other unplanned concern I have is the arm pads. I repeatedly told Mohamed that I need wide and flat arm pads. He said he would send out some different styles and we could try to make them work because Quickie doesn’t really have wide ones. They max out at about 2, maybe 3in. But there are no extra arm pads in the stuff left behind and the ones on the chair are indeed super narrow, so that’s concerning.
Other than that stuff, the chair looks great and we will make it work. I still hate the footrest hangers. They aren’t as ugly in person, but they also don’t match anything else on the chair. It’s black, purple, and green. They’re just a couple of random silverish bars. But the reason I really don’t like them is because I can’t operate them myself. The old system (like the manual hangers pictured below) have a paddle style release on the side that I can brush against a corner and they flip the footrest out sideways. The new ones are operated by a trigger style latch, so someone has to pull the trigger and twist the footrests out. I won’t be able to do that by myself. Hopefully, that’s my only loss when I finally get in the new chair. At least it’s a pretty chair.
Howdy, howdy! How’s everyone doing this lovely Wednesday? It’s actually Monday as I’m writing this because my new wheelchair is supposed to be delivered tomorrow, so I probably won’t feel like writing a blog post. But! It means you can expect an update on the saga next week. I’m still waiting on Medicaid to review my renewal paperwork. That’s about it besides the low level terror of the administration and living in Texas and how they all feel about cripples. But, anyway. It’s the last Wednesday of July, so you know what that means. Book review time! This month, I stuck within my cozy mystery comfort zone. Shrink Solves Murder by Philippa Perry was released by Crown Publishing on the 28th. As usual, I must thank them and NetGalley for access to an ARC in exchange for an honest and unbiased review. Let’s do the thing!
Shrink Solves Murder follows Patricia Phillips, a psychotherapist and woman of a certain age. She’s set in her ways. She has issues with her daughter, relationships, and isn’t likely to win Miss Congeniality even if her life depended on it. But at least she’s good at her job. Right? When a client shows up dead in a prime suicide spot and the police rule the death just that, Pat wonders just how wrong she could have been about the young man’s state of mind. Was she wrong at all or is something more sinister going on? Since the police have no interest in finding the truth, Pat will do it herself.
Plot: pretty standard. Pat wrangles her bestie (Pritchard) into helping her solve what may or may not be a murder. It’s a small English village (think Midsomer Murders, but on the seaside). People get up to all kinds of things from the mundane to the kinky. Everyone kind of seems to hate each other but can’t stand it when anyone seems to hate them. It’s the type of book where everyone is too obvious to be the murderer, so when they’re revealed it’s one of those “who? Oh, that one who was mentioned once 200 pages ago” moments. They actually show up a couple of times, but still. Same feeling. There’s no real romantic entanglement, not even a hint at one. But there’s a random growth arc with her daughter. To be honest, it wasn’t very memorable as far as cozy mysteries go, but it wasn’t bad at all. I quite enjoyed it as I was reading it.
Characters: interesting for the most part. Pat definitely feels like a self-insert. I wouldn’t call her a Mary Sue per se because she’s not young and perfect and all that. But it definitely feels like the author writing a story with some part of herself as the main character. Pat’s still an interesting character, though. Love Pritchard, but I want to know more about him. He has potential. I just felt he was still cookie-cutter quirky friend. I could do without the DS. She’s lazy and doesn’t do her job and only wants to fool around with her boyfriend. She did nothing for the book. The rest of the characters were flat. But if you read the acknowledgments, you’ll see that most of the characters are literally named after the author’s friends. It was a bit cringe to be honest. Made the whole thing feel a little like middle school besties writing stories for each other.
Writing: fine. There wasn’t anything wrong with the writing. It was just fine. But I fully admit that the title annoys me. I guess they were going for news headline speak, but I still hate it. If the blurb hadn’t interested me, I would’ve skipped it.
Ultimately, I found Shrink Solves Murder okay. It wasn’t bad. The characters could go either way if there are future books. If I end up liking them, I might read past book two. But I probably will pick up a second book at least.
Overall, I gave it 3 out of 5 stars. A solid 3. There’s potential, but I’m not quite sure if it could support a series. If you like seaside English villages, give it a try.
Howdy, howdy! How’s everyone doing this wonderful Wednesday? Things here are okay so far. I’m not hearing good things about this administration and their disability policies. But I haven’t taken the time to do a deep dive to see what’s real and what’s panic/fearmongering, so I’m not going to freak out yet. Anyway, I’m still waiting for the wheelchair and for Medicaid to review my poorness, so I don’t have anything new to ramble about. However, since it’s still Disability Pride Month, I decided to make a list of books by disabled authors. These are not books I’ve read because I never actually intentionally looked for books by disabled writers, so I have missed a lot. Shame on me. But they have been added to my TBR list!
1. Hunchback by Saou Ichikawa.
2. Sipping Dom Pérignon Through a Straw: Reimagining Success as a Disabled Achiever by Eddie Ndopu.
3. Jonathan Strange and Mr Norrell by Susanna Clarke.
4. Year of the Tiger: An Activist’s Life by Alice Wong.
5. Game Changer by Rachel Reid.
I’ll be back next week with the usual book review!
Howdy, howdy! How’s everyone doing this lovely Wednesday? Things here are usual. The waiting game. Medicaid decided it is time for me to renew, which basically just means proving I’m still poor as well as cripple. I got everything together and sent it in. Last year they screwed me around even though I had everything faxed to them within a day of each letter I received. I called them repeatedly and was told I was fine and they had everything. Got told I was denied because I didn’t send anything in. Had to have my CLASS case manager come call in with me. Luckily, we finally got in touch with someone who knew what they were doing and that lady input everything based on what I had in fact sent in and fast tracked my approval. So, to hopefully avoid all that drama, I submitted everything online this time. We’ll see if that goes any better. Anyway, I figured I would give you a small update on the Wheelchair Saga. You can check out parts 1, 2, 3, 4, and 5 in their respective links.
We’re still in the hurry up and wait phase. Which is partly my fault. I hate the footrests that come with the Q700, so I had emailed Sunrise (they make the Quickies) to see if they could put hangers and plates from the manual chairs on the Q700. They took forever to answer, but eventually said they could do that. My chair order had only been put in a couple of days before, so I decided to ask Universal to see if they could get me what I wanted instead of the ugly ones. They asked for a hold to be put on my chair and asked if it could be done. At first it seemed like it would be fine, but it would cost extra. Then it took a week for Sunrise to randomly say no they can’t do it. I don’t know why it took so long. No idea why they can’t do it. Whatever. So, that added an extra week of waiting for nothing. The original guesstimate for delivery was 2-3 weeks. That was June 1st. Throw in the week I waited for nothing. 3-4weeks. It’s been 6 weeks.
But I did get an email from Mohamed on July 10th saying that he was told my chair had shipped from Nashville and that they should get it this week. He did inform me that even though they couldn’t get the hangers I wanted, they could do the footplates. At least they won’t be as ugly/cheap looking. Anyway, they’ll then call me to schedule the appointment to bring it out and set everything up. More waiting! Maybe I’ll have something new to report next week.
Hello, hello! How’s everyone doing this wonderful Wednesday? Still waiting for the wheelchair. Dad’s keeping busy. Things are usual. Mostly, I’m just here with your yearly reminder that while Pride may be over, July is Disability Pride Month! It’s time to stop hating people for existing as LGBTQ+ and start hating those of us who exist as disabled. But but but… disabled people are soooooooo inspirational! We would never (overtly) hate “special needs” people! The government would never come after people who are “actually” disabled! Have I got some news for you…
The DOJ recently (June 18th, 2026) released a memorandum trying to convince people that the Olmstead Decision of 1999 doesn’t mean what it means. Basically, it’s one of the legal pillars (along with section 504 of the rehabilitation act of 1973 and title II of the ADA) that prevents discrimination against disabled people. The Olmstead Decision makes it clear that disabled people deserve to live in and be cared for within their communities whenever possible. In other words, they can’t be forcibly institutionalized simply because they are disabled. Home and Community Based Services have expanded exponentially because of this ruling. And you know what? It’s far cheaper for the government to provide in-home care for people with disabilities because they don’t pay for 24/7 care or anything extra like a building/food/drinks/etc. But institutions can be made by for-profit organizations, just like prisons. So, while they cost the state more money, the backhanders to politicians are more lucrative for the individual. But I digress.
My dad is paid to take care of me because of this ruling. So many people rely on home health services, including me. Granted, the memorandum doesn’t technically mean anything right now. It’s just an opinion piece. But it gives states the basis they need to start questioning the decision and provides grounds for trying to fight it. And the fact that Texas (where I live) is still trying to get section 504 removed, makes everything all the more terrifying because they’ll keep going until disabled people have no rights. But I have nothing to worry about. I’m overreacting. Right? Right?!
So, yeah. This kind of stuff is why Disability Pride Month exists. As long as our rights are threatened, this will continue to be a thing. And please know that the administration is currently also messing with disabled people’s access to a proper education, but I’m only vaguely aware of what’s happening there, so I’m not expanding on it in my rant. Happy Disability Pride Month!
Howdy, howdy! How’s everyone doing this lovely Wednesday? Things here are usual. Quiet with a constant undercurrent of terror. I’m still playing the waiting game. But we’re not here for any of that. It’s the last Wednesday of June, so you know what that means. Book review time! This month, I decided to go with an Egyptian mythology retelling. I knew the very basics going in, but it’s not a mythology I’ve looked into much, so I was just along for the ride. Isis of Egypt: Goddess of Thrones by Malayna Evans was released yesterday (the 23rd) from Alcove Press. As usual, I must thank them and NetGalley for access to an ARC in exchange for an honest and unbiased review. Let’s do the thing!
Isis of Egypt: Goddess of Thrones follows the goddess Isis from birth throughout many of her greatest challenges. It’s not easy being the power behind the throne of the gods, but someone has to find and manipulate the right gods into power. But what happens when her beloved husband is kidnapped after years of peace and prosperity? The goddess abandons everything to search for him, letting chaos reign in her absence. Will her journey bring her husband back to her? Will she be able to end the chaos when she returns? Only time will tell.
Plot: it’s the tale of Isis. I didn’t know much going in, so I’m trusting the author (who has a Ph.D in Egyptian history) to know her stuff. The setting and story were lovely. I enjoyed how much page time went to the minor gods and goddesses. The pacing was pretty good, though a couple of spots lagged. I’m gathering those were the areas that the lore didn’t really cover, because it was mostly filler. But I learned a lot and had fun doing it. My only complaint would be the attempt to make Set sympathetic at the end. The entire book basically highlights what an asshole he was, then when he gets his ass kicked, we’re suddenly supposed to feel bad for him because he had crappy role models? Nah. He’s quite literally the personification of chaos. Just let him be the asshole.
Characters: mostly likeable/understandable. For a book told in close third person, most of the characters are surprisingly fleshed out. Except Osiris. He was basically perfect in Iris’s eyes, which was annoying. Also, apparently there’s a lot of incest in Egyptian mythology. It’s weird. But at least they don’t deny it/skip over it like some mythologies (looking at you Christianity). However, Isis and her siblings are gods, so I guess that’s what makes it okay. I don’t know. I spent far too long trying to convince myself it wasn’t icky, but never quite succeeded.
Writing: kind of preachy. Don’t get me wrong, I agree with the ideas in this book, but everything was so overexplained that it quickly became too much. It was written in more of a memoir style than as a novel, so most of it is Isis telling us the lessons we should learn rather than showing us. Yes, we get it. Stop beating the horse. It’s already dead.
Ultimately, I had mixed feelings about Isis of Egypt: Goddess of Thrones. I really enjoyed learning about Egyptian mythology. The plot and characters were good for the most part. The writing was lacking. It was a solid look into Isis if you’re interested in Egyptian mythology.
Overall, I gave it 4 out of 5 stars. Actually, a solid 3.5, but rounded up because I didn’t feel a 3 was fair. I enjoyed it well enough and think it’s worth a look if you don’t mind something that overexplains everything.
Hello, hello! How’s everyone doing this wonderful Wednesday? Things here are fine. Really. Nothing to complain about that’s important or relevant or even worth it. But I’m currently angry and tired and just want to scream or cry or something. I’m not actually going to do anything. I’ll bottle it all away for another day. Mostly because I don’t currently know why I’m feeling this way, so I can’t explain it, which just makes it even more annoying. Anyway. I’m tired. I’ll be back next week with a book review.
Shawna's Blog of Doom 