You Thought You Were Done With Pride Month, Didn’t You?

Howdy, howdy! How’s everyone doing? Can you believe it’s already July? I hope everyone survived the fireworks and what have you with their sanities, pets, and houses intact. Three days to celebrate the 4th. Why did it take three days? Anyway, I don’t really have anything to ramble about, so I thought I would take the chance to remind people that the LGBT+’s Pride month might be over, but July happens to be Disability Pride Month! Most people still don’t even know it exists. I didn’t know until last year. Apparently some cities even have parades and crap for it. Not mine, but Chicago has been doing one for like 18 years. I believe NYC and LA usually do something too. There’s even a flag.

It’s not my favorite flag in the world, but it’s something.

So, why do we need a Disability Pride month? A few reasons, really. One, to help normalize disabilities and fight against the ableism that runs rampant in the world. I’ve always rambled on this blog about the various ways people treat me just because I’m cripple, especially when I get ignored at restaurants. I brush it off as people being idiots, but it’s blatant ableism. And it’s the tip of the iceberg. There are so many different forms of ableism that it’s hard to keep track. Aside from the way people treat the disabled community, there’s also lack of physical access because for some reason the government here in the U.S. thinks old architecture is more important than making it accessible. So, they grandfather buildings to make it so they don’t have to be ADA compliant. And these are just examples of things I have to deal with. There are many other disabilities, all of which have their own issues to face. Ableism is so ingrained in our society that even I’m guilty of it. I’m trying to be better, but it’s hard. Helping people to understand disability and to recognize that it’s a normal part of life is the only way to move forward towards a more inclusive future.

Two, to help fight for equal rights. In the U.S., people with disabilities are discriminated against all the time. Most of that stems from ableism, but we also have to contend with idiotic laws. We’re forced to choose between our benefits and things like jobs or marriage. And most of us can’t live without those benefits. I can’t live without Medicaid because it funds the program that pays for someone to take care of me. If I lose Medicaid, I lose that. But because the only way I could get Medicaid was by getting on SSI, a program designed for the indigent, I’ll get kicked off if I make too much money. So, I can’t get a job unless it’s a ridiculously good one (for someone with no real experience and zero references, hahaha) and I can’t get married (they would start counting my spouse’s income against my benefits). It’s basically forced poverty and it’s ridiculous. Disabled people deserve to be able to contribute to society or get married without risking our benefits. Sure, if I get rich and no longer need the benefits, kick me off, but I can’t get to that point without working.

Me after dealing with the government.

Three, to help disabled people remember that they are indeed people and that they aren’t alone. This might seem like an obvious thing, but it’s not. Disabled people internalize ableism as well. It’s hard not to feel like a burden, especially when you have to ask for help or accommodations or whatever. Throughout my teens and early twenties, I was constantly reminded of everything my mother sacrificed for me (she was a toxic narcissist, but she’s dead now, so yeah). I still have a hard time even asking for stuff I need (like having my nose wiped or needing pillows moved at night or whatever) when I know it will inconvenience someone (usually Dad). Part of that struggle is just left over from my mother, but part of it is the whole cripple burden thing. Seeing that I’m not alone, that other disabled people exist and live happy lives, helps a lot. So, yeah. Disability Pride Month is good for educating others, but it’s also good for people who live with disabilities every day.

I chose a creepy picture because that’s who I am, but it’s good to see I’m not alone in my struggles.

Like I said, the examples in this post are my own. Other disabilities have other issues, but there’s always going to be some overlap. Anyway, happy Disability Pride Month! As always, feel free to leave your comments, questions and thoughts here or on my social media pages!

More Shameless Self Promotion

Hello, hello!  How is everyone doing this wonderful day?  I just realized it’s National Poetry Month and what better way to celebrate than to announce my latest publication?  My poem, “Dear God,” was released on Monday in Breath and Shadow’s Spring ’19 issue.  So, I thought I would take a moment to update you on this and on how Road Kill: Texas Horror by Texas Writers Vol. 3 is doing.

8518cdb28111578c547de39004fabab119
Couldn’t find one with a writer instead of the skier.

First, the new one!  “Dear God” is a piece I shared on here a few years ago, so if it seems familiar, that’s why.  However, the version posted on Breath and Shadow has been edited into a more streamlined piece.  It was originally written while I was an undergrad taking an Intro to Poetry Writing class with professor Jennifer Key.  One of our assignments was to write a poem speaking to God.  Many of the students wrote extremely happy and/or vague poems, so it was a little weird when it came time to read mine.  But I’m glad I read it to the class and I’m proud that this newest version is out in the world.

A little bit about Breath and Shadow.  It’s a quarterly journal out of Maine that focuses strictly on disabled writers, no matter the disability.  It’s a wonderful publication that gives a voice to a vast group that often goes unheard.  Normally, I keep my disability to myself when I’m submitting my work because I don’t want to be a publication’s token cripple or fodder for inspiration porn, but Breath and Shadow is a place where I didn’t have to worry about any of that.  Why?  Because all of the editors and staff have their own disabilities, as well as all of the contributors.  It’s simply a neat journal that publishes awesome writing by people who happen to be disabled.  Check it out.

inspiration-porn-photo-2
Inspiration porn, BUT there’re also adorable puppers.  I’ll let it slide.

And lastly, an update on Road Kill vol. 3.  It recently won the North Texas Book Festival Book Award!  I’m super proud to be in a collection with such a wonderful group of writers.  Thank you once again to E.R. Bills for putting it together.  If you haven’t checked it out, visit the link at the beginning of this post and consider picking up a copy.  It’s available as a paperback and a Kindle ebook.

56887115_10217318976719067_5274401263201550336_o
Wootwoot!

I’m wrapping this up a little quicker than usual, since I’m sure you’re tired of my shamelessness.  I’ll be back next week with a special book review of a duet (two reviews for the price of one)!  In the mean time, feel free to share your thoughts, comments, or recent accomplishments here or on my social media pages.