You Thought You Were Done With Pride Month, Didn’t You?

Howdy, howdy! How’s everyone doing? Can you believe it’s already July? I hope everyone survived the fireworks and what have you with their sanities, pets, and houses intact. Three days to celebrate the 4th. Why did it take three days? Anyway, I don’t really have anything to ramble about, so I thought I would take the chance to remind people that the LGBT+’s Pride month might be over, but July happens to be Disability Pride Month! Most people still don’t even know it exists. I didn’t know until last year. Apparently some cities even have parades and crap for it. Not mine, but Chicago has been doing one for like 18 years. I believe NYC and LA usually do something too. There’s even a flag.

It’s not my favorite flag in the world, but it’s something.

So, why do we need a Disability Pride month? A few reasons, really. One, to help normalize disabilities and fight against the ableism that runs rampant in the world. I’ve always rambled on this blog about the various ways people treat me just because I’m cripple, especially when I get ignored at restaurants. I brush it off as people being idiots, but it’s blatant ableism. And it’s the tip of the iceberg. There are so many different forms of ableism that it’s hard to keep track. Aside from the way people treat the disabled community, there’s also lack of physical access because for some reason the government here in the U.S. thinks old architecture is more important than making it accessible. So, they grandfather buildings to make it so they don’t have to be ADA compliant. And these are just examples of things I have to deal with. There are many other disabilities, all of which have their own issues to face. Ableism is so ingrained in our society that even I’m guilty of it. I’m trying to be better, but it’s hard. Helping people to understand disability and to recognize that it’s a normal part of life is the only way to move forward towards a more inclusive future.

Two, to help fight for equal rights. In the U.S., people with disabilities are discriminated against all the time. Most of that stems from ableism, but we also have to contend with idiotic laws. We’re forced to choose between our benefits and things like jobs or marriage. And most of us can’t live without those benefits. I can’t live without Medicaid because it funds the program that pays for someone to take care of me. If I lose Medicaid, I lose that. But because the only way I could get Medicaid was by getting on SSI, a program designed for the indigent, I’ll get kicked off if I make too much money. So, I can’t get a job unless it’s a ridiculously good one (for someone with no real experience and zero references, hahaha) and I can’t get married (they would start counting my spouse’s income against my benefits). It’s basically forced poverty and it’s ridiculous. Disabled people deserve to be able to contribute to society or get married without risking our benefits. Sure, if I get rich and no longer need the benefits, kick me off, but I can’t get to that point without working.

Me after dealing with the government.

Three, to help disabled people remember that they are indeed people and that they aren’t alone. This might seem like an obvious thing, but it’s not. Disabled people internalize ableism as well. It’s hard not to feel like a burden, especially when you have to ask for help or accommodations or whatever. Throughout my teens and early twenties, I was constantly reminded of everything my mother sacrificed for me (she was a toxic narcissist, but she’s dead now, so yeah). I still have a hard time even asking for stuff I need (like having my nose wiped or needing pillows moved at night or whatever) when I know it will inconvenience someone (usually Dad). Part of that struggle is just left over from my mother, but part of it is the whole cripple burden thing. Seeing that I’m not alone, that other disabled people exist and live happy lives, helps a lot. So, yeah. Disability Pride Month is good for educating others, but it’s also good for people who live with disabilities every day.

I chose a creepy picture because that’s who I am, but it’s good to see I’m not alone in my struggles.

Like I said, the examples in this post are my own. Other disabilities have other issues, but there’s always going to be some overlap. Anyway, happy Disability Pride Month! As always, feel free to leave your comments, questions and thoughts here or on my social media pages!

Disability “Pride” Month

Hello, hello! July is chugging right along. How is everyone doing? I’m not as productive as I should be, but I’m still getting stuff done. I switched both of my remaining yearly check ups to televisits, so I don’t have to worry about going to UT Southwestern this year (huzzah!). Otherwise, I’ve been procrastinating and writing and reading and submitting and querying. It sounds like a lot, but I could be writing more. Anyway, I recently discovered that July is Disability “Pride” Month. I have conflicting feelings about that name, so I thought I’d ramble about it for a bit.

Disability-Pride
It’s a thing.

I’ve never really been comfortable with pride months/weeks/days/whatever. Especially when it’s referring to something genetic. I can’t think of one good thing that has come from people being proud of their genes. It’s creepy and you literally did nothing to be proud of. If anything, you should be proud of your parents for having sex and making you.

Not all disabilities are genetic! I know this. If you survived an accident or something, you deserve to be proud of yourself. You even deserve to be proud of yourself for living with a disability. It’s hard work. I should know. My issue is that “Disability Pride Month” makes it sound like we should be proud of being disabled. I mean, if you’re proud of your disability, more power to you. But I’m not. I had no choice in the matter, so why should I be proud of it? I’m proud of myself for earning an MFA in creative writing. I’m proud of myself for trying again and again despite the plethora of rejections I receive. I’m proud of myself when I come up with a solution for something like reaching a pen that’s an inch too far away. But my disability isn’t something I’m proud of. It’s neither here nor there. I just have to deal with it. 

tenor (12)

Personally, I’d rather have a Disability History Month. I’d love to see the TV stations doing specials on people with disabilities or airing little factoids during commercial breaks like they do for other history months. And I don’t mean inspiration porn type stuff. I want to learn about Helen Keller the activist, the first blind and deaf woman to earn a BA, the author, etc. I want to hear about how Sir Anthony Hopkins delves into a role and how his acting style may have been influenced by his (until late-in-life) undiagnosed Asperger’s syndrome. I want to see something about Justin Dart Jr. (a survivor of polio who ended up in a wheelchair because of it) who played a major role in getting the Americans with Disabilities Act passed thirty years ago. There are so many interesting people with disabilities, so it would be neat to actually learn about them without the whole inspo-porn twist that gets thrown into similar stories.

theonlythingworsethanbeingblind

That’s just how I feel. The word choice creeps me out, but I’m okay with having a month where people get to learn about people with disabilities. I know some people will get in huff about “why isn’t there an Able-bodied Pride/History Month?” but whatever. People just like to complain when they feel left out even though it’s not really meant to exclude them, but instead, it’s an invitation to learn about something outside of their bubble. As usual, feel free to share your thoughts and comments here or on my social media pages!