Disability “Pride” Month

Hello, hello! July is chugging right along. How is everyone doing? I’m not as productive as I should be, but I’m still getting stuff done. I switched both of my remaining yearly check ups to televisits, so I don’t have to worry about going to UT Southwestern this year (huzzah!). Otherwise, I’ve been procrastinating and writing and reading and submitting and querying. It sounds like a lot, but I could be writing more. Anyway, I recently discovered that July is Disability “Pride” Month. I have conflicting feelings about that name, so I thought I’d ramble about it for a bit.

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It’s a thing.

I’ve never really been comfortable with pride months/weeks/days/whatever. Especially when it’s referring to something genetic. I can’t think of one good thing that has come from people being proud of their genes. It’s creepy and you literally did nothing to be proud of. If anything, you should be proud of your parents for having sex and making you.

Not all disabilities are genetic! I know this. If you survived an accident or something, you deserve to be proud of yourself. You even deserve to be proud of yourself for living with a disability. It’s hard work. I should know. My issue is that “Disability Pride Month” makes it sound like we should be proud of being disabled. I mean, if you’re proud of your disability, more power to you. But I’m not. I had no choice in the matter, so why should I be proud of it? I’m proud of myself for earning an MFA in creative writing. I’m proud of myself for trying again and again despite the plethora of rejections I receive. I’m proud of myself when I come up with a solution for something like reaching a pen that’s an inch too far away. But my disability isn’t something I’m proud of. It’s neither here nor there. I just have to deal with it. 

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Personally, I’d rather have a Disability History Month. I’d love to see the TV stations doing specials on people with disabilities or airing little factoids during commercial breaks like they do for other history months. And I don’t mean inspiration porn type stuff. I want to learn about Helen Keller the activist, the first blind and deaf woman to earn a BA, the author, etc. I want to hear about how Sir Anthony Hopkins delves into a role and how his acting style may have been influenced by his (until late-in-life) undiagnosed Asperger’s syndrome. I want to see something about Justin Dart Jr. (a survivor of polio who ended up in a wheelchair because of it) who played a major role in getting the Americans with Disabilities Act passed thirty years ago. There are so many interesting people with disabilities, so it would be neat to actually learn about them without the whole inspo-porn twist that gets thrown into similar stories.

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That’s just how I feel. The word choice creeps me out, but I’m okay with having a month where people get to learn about people with disabilities. I know some people will get in huff about “why isn’t there an Able-bodied Pride/History Month?” but whatever. People just like to complain when they feel left out even though it’s not really meant to exclude them, but instead, it’s an invitation to learn about something outside of their bubble. As usual, feel free to share your thoughts and comments here or on my social media pages!

Going With The Flow

Howdy, howdy!  How is October almost over?  Next week is book review time and I have no idea what I’m going to review.  I thought I was more organized than that, but surprise!  I’m not.  I’m also super behind on a lot of my goals for the year.  It has just been really hard to find a balance between writing and life that doesn’t make me sick of either one.  When I hit those points of burnout, it throws off my schedule and everything gets stressful.  So, I thought I would ramble a bit about being organized vs. being flexible.

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Most of the time, I’m in mood number one.

I’m actually a super organized person, even though it doesn’t really look like it.  And by organized, I mean that I verge on the obsessive, especially when it comes to my routines.  I like plans.  I build my writing and slushing (I’m a first reader for PseudoPod) schedule around plans.  In fact, I keep goal lists for the week, month, and year.  Daily goal lists are something I make most days upon getting up.  Knowing what I’m supposed to get done each day eases my anxiety.  It also makes it easier for me to say yes or no to random errands (like when Dad asks if I want to go to the grocery store or Home Depot or out for dinner last minute).  Being organized is great because it even lets me build flexibility into my schedule.

On the other hand, shit happens.  People flake on you.  Allergies attack.  Computers randomly die or the Internet goes out.  Or a million other stupid little things that can’t be controlled happen.  Sometimes, I can foresee that my plans are going to be shot for the day (like when I have a doctor’s appointment that should only take 10 minutes, but I know I’ll be there at least an hour), so I make that a “do whatever” day.  Other times, I get burnt out by my routine and end up procrastinating for weeks.  But usually, life just gets in the way and I have to accept that.  Going with the flow isn’t my strong suit, but I’m trying to get better at it.

616498_1I’m trying to be more flexible, to just go with the flow.  I’ve come to the point where I can acknowledge that I won’t finish all my goals some of the time.  I even push less important things back a week (or month or year).  It’s not a huge step toward being flexible, but I’m making progress.  Building flexibility into my schedules is probably the closest I’ll ever get to being the type who rolls with whatever.  As long as I get my main goals done each day, I think I’ll be fine with the flow.

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Go with the Flow by Amanda Cass.

What about you?  Are you super organized?  Do things messing up your plans freak you out or tick you off?  Or are you the flexible kind who can shrug things off and follow the new path with ease?  Feel free to share your thoughts or questions here or on my social media pages!